患者之声.pdf

1、SESSION 1:Keynote Presentation:The Patient VoiceStacey Lee,JDProfessor of Law and Ethics at the Johns Hopkins University Carey Business School(with a joint appointment at the Bloomberg School of Public Health)Stacey B.Lee,JDProfessor of Law and EthicsJohns Hopkins Carey Business School(joint appoint

2、ment at Bloomberg School of Public Health)THE PATIENT VOICEChallenges in the Healthcare SystemLower insurance coverage and unmet healthcare needs among visually impaired individuals.Statistical Insights7%of visually impaired adults lacked health insurance coverage4%of visually impaired adults did no

3、t have a usual healthcare provider 29.2%of visually impaired adults had unmet healthcare needs due to cost barriersChallenges in the Healthcare SystemDaily ChallengesInaccessible medical forms,lack of braille signage.Attitudinal barriers and misconceptions about capabilities.Seeing visual impairment

4、 as a different way of navigating the world.Practical SolutionsEducate Yourself:Learn about challenges and resources.Speak Up:Advocate for accessibility and against discrimination.Support Advocacy Organizations:Donate or volunteer.Champion Inclusive Design:Prioritize accessibility in healthcare prod

5、ucts/services.Foster Empathy:Listen to and share experiences of visually impaired individuals.Advocacy and SolutionsEmpowering ChangeIndividual AdvocacyKnow your rights,communicate needs,request accessible formats.Bring support to appointments,file complaints if necessary.Systemic AdvocacySupport fr

6、om organizations like AFB and NFB.Recent legislative efforts and the role of inclusive design.ConclusionNavigating the healthcare system can be challenging.Importanceof beinginformed,prepared,andassertive.Our responsibilitytosupportandempow