通过评估和解决语言障碍来改善儿科研究的正义、公平、多样性和包容性.pptx

1、Improving Justice,Equity,Diversity,and Inclusion in Pediatric Research by Assessing and Addressing Language Barriers,Dr.Quynh DoanSenior Executive Director,BC Childrens Hospital Research Institute,Background,Canadians indicated a willingness(68%)to participate in clinical trials1 Families at BC Chil

2、drens Hospital demonstrated an even higher rate of willingness(85%)to participate in pediatric health research2Patients with Limited English Proficiency(LEP)are less likely to be approached to participate in clinical research compared with English-speakers3Studies show that pediatric patients from a

3、 minority background were more likely to participate in studies where language translation was available4Research lacking inclusiveness and diversity is unjust,ineffective,and not generalizable contributing to further population level health disparities,Project Goals and Objectives,*Preliminary fund

4、ing provided by a UBC SIF Grant,144/878(17%)explicitly excluded low English proficiency441/878(50%)had no provisions for language barriers293/878(33%)had at least partial 2nd language provisions to facilitate informed consent processes,Results,Recommendations and Future Directions,Engage with resear

5、ch teams to determine barriers and facilitators to implementing effective 2nd language provisionsStandardize language provision requirements and institutional support for professional translation and interpretationPilot the provision of interpretation and translation resources by the research instit

6、ute to estimate potential and cost for change,Figure 2:Description of 2nd language provisions implemented by prospective studies(n=1670)at BCHRI.,Understanding Current State,4,Conclusions,Heavy reliance on clinical resources to support informed consent processes for researchSevere lack of research-d