对家庭的影响和促进复原力.pdf

1、The Impact on Family and Promoting ResiliencyShirley Huang and Ryan YooBreakout SessionJune 28,2023Financial Disclosures No commercial relationships to discloseLearning Objectives1st Learning Objective:To acknowledge the impact of enteral/parental dependency(and complex medical illness)on the family

2、 as a whole 2nd Learning Objective:To explore common themes amongst families3rd Learning Objective:To consider a shift in focus to promote resiliencyFor this breakout session Interactive Sharing of experiencesA Little About Us.General academic pediatrician with an interest in children with medical c

3、omplexity and population health 15 year old daughter with short bowel syndrome and liver disease Ryan senior in high school.Oldest of 3.Enjoys soccer and playing video games.Impact on Family Can be all consuming More than a full time job Cha cha cha dance Two small steps forward and one big step bac

4、k Plan and expect the unexpectedBalancing It All as a parent Child Caregiving,parenting,and just having fun Siblings Special time,being fair Yourself/Your Spouse Self-care There is never enough time in the day!Balancing the+and the-Negatives that can bring you down Opportunities to grow as an indivi

5、dualMy Sibling Experience-RyanNEGATIVE Unable to do some normal activities Attracts unwanted attention from othersPOSITIVE More empathic and open-minded Positive opportunities and experiences Stronger connection with siblingHow This Has Impacted Me Perception of Normal Things such as hooking up Jani

6、e at night Opportunities Relationships Parents,siblings,friends are strong Challenges Conflicting interestsHow I Have Evolved Choice of Activities Family time Individual activities Connections Trust,empathy,committed Coping Seeing the big picture Self I am a b